There is some treatment of the ethical considerations of post-mortem DNA collection and banking here, but this is for research and not for profit or memorialization, which adds some additional concerns: https://t.co/HXtWNSX8xr
Hoe zit het met de #privacy van overleden patiënten (en hun familieleden) als hun gegevens en lichaamsmaterialen na overlijden voor #onderzoek worden gebruikt? Zie hierover het artikel van Marieke Bak et al. https://t.co/hIR6wM4h3A https://t.co/cGxy4L9t6h
RT @Marieke_Bak: The blog is based on our empirical research and recently published review article in @ejhg_journal https://t.co/Ob2rr30QcV
The blog is based on our empirical research and recently published review article in @ejhg_journal https://t.co/Ob2rr30QcV
Congrats @Marieke_Bak!
RT @GacetaCienForen: Stakeholders’ perspectives on the post-mortem use of genetic and health-related data for research: a systematic review…
RT @GacetaCienForen: Stakeholders’ perspectives on the post-mortem use of genetic and health-related data for research: a systematic review…
Stakeholders’ perspectives on the post-mortem use of genetic and health-related data for research: a systematic review---https://t.co/xgxCyuyKwO
RT @Biobanking: Stakeholders’ perspectives on the post-mortem use of genetic and health-related data for research: a systematic review | Eu…
Stakeholders’ perspectives on the post-mortem use of genetic and health-related data for research: a systematic review | European Journal of Human Genetics https://t.co/WIj8Wxky4E #Biobanking #ELSI
RT @Marieke_Bak: Our article about post-mortem use of #health and #genetic #data for #research has been published in @ejhg_journal. The pap…
RT @Marieke_Bak: Our article about post-mortem use of #health and #genetic #data for #research has been published in @ejhg_journal. The pap…
Our article about post-mortem use of #health and #genetic #data for #research has been published in @ejhg_journal. The paper will form a basis for our future work on #ethics of death & data in medical research @amsterdamumc https://t.co/Ob2rr30QcV