National Registries of Rare Diseases in Europe: An Overview of the Current Situation and Experiences

Overview of attention for article published in Public Health Genomics, September 2014

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Citations

dimensions_citation: 32 Dimensions

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mendeley: 61 Mendeley

Summary X Dimensions citations

So far, Dimensions has found 32 publications that cite this research output.

32

The most recent citing publications are shown below. View all 32 publications that cite this research output on Dimensions.

Informing a national rare disease registry strategy in Australia: a mixed methods study

Article in BMC Health Services Research (October 2023)

Current state of rare disease registries and databases in Australia: a scoping review

Article in Orphanet Journal of Rare Diseases (July 2023)

The Minimum Data Set for Rare Diseases: Systematic Review

Article in Journal of Medical Internet Research (July 2023)