Genes, cells, and biobanks: Yes, there’s still a consent problem

Genes, cells, and biobanks: Yes, there’s still a consent problem | PLOS Biology References/ No 53. S.Somiari #Organs #Transplants https://t.co/y9hs3DC0fp

RT @CaulfieldTim: @psuvafan007 @Kunzelman75 @HankGreelyLSJU Quite complex, actually. A 2017 piece on point I wrote with @BlakeMMurdoch: h…

@psuvafan007 @Kunzelman75 @HankGreelyLSJU Quite complex, actually. A 2017 piece on point I wrote with @BlakeMMurdoch: https://t.co/utZ2WMKRUP

Interesting time for biobank research: - Expensive projects that are (arguably) underperforming (as measured against promises); - Consent issues remain (https://t.co/utZ2WMKRUP); - Privacy issues intensifying; - And public interests seem to be evolving (e

RT @CaulfieldTim: "If Your Medical Information Becomes A Moneymaker, Could You Get A Cut?" via @rrichardh https://t.co/4sblPuXt8Q I'm fasc…

"If Your Medical Information Becomes A Moneymaker, Could You Get A Cut?" via @rrichardh https://t.co/4sblPuXt8Q I'm fascinated by this question. For example, how will this thinking change the consent process? We touched on these issues here: https://t.co/

RT CaulfieldTim: Looking forward to speaking at icdppc2018 in #Brussels next week! Ethics & privacy. The challenges continue to intensify: https://t.co/9HFIAzqR1d). cc EU_EDPS, Buttarelli_G icdppc2018 #DigitalEthics #DebatingEthics Warm up: https://t.

RT @CaulfieldTim: Looking forward to speaking at @icdppc2018 in #Brussels next week! Ethics & privacy. The challenges continue to intensify…

Looking forward to speaking at @icdppc2018 in #Brussels next week! Ethics & privacy. The challenges continue to intensify: https://t.co/a14vaNmQ2k). cc @EU_EDPS, @Buttarelli_G @icdppc2018 #DigitalEthics #DebatingEthics Warm up: https://t.co/utZ2WMKRUP

RT @CaulfieldTim: Interesting issue: "When Scientists Develop Products From Personal Medical Data, Who Gets To Profit?" by @rrichardh https…

RT @CaulfieldTim: Interesting issue: "When Scientists Develop Products From Personal Medical Data, Who Gets To Profit?" by @rrichardh https…

RT @CaulfieldTim: Interesting issue: "When Scientists Develop Products From Personal Medical Data, Who Gets To Profit?" by @rrichardh https…

Interesting issue: "When Scientists Develop Products From Personal Medical Data, Who Gets To Profit?" by @rrichardh https://t.co/YRYYodxNuy Tied to growing interest in "biorights". We touch on challenge (consent, research ethics) here: https://t.co/F2y8L5G

RT @CaulfieldTim: @hswapnil @DrDeidraCrews @S_brimble @Peralta_KHRC @NavTangri @LTummalapalli @Nephro_Sparks @RachelPatzerPhD @allisontong1…

@hswapnil @DrDeidraCrews @S_brimble @Peralta_KHRC @NavTangri @LTummalapalli @Nephro_Sparks @RachelPatzerPhD @allisontong1 @taraichang Remember, the core of that paper is about legality of waived/altered consent in context pragmatic trials. Our conclusion:

RT @CaulfieldTim: Fascinating trend. Genomics company https://t.co/dRFRjcY71w wants to "empower people to own their personal genomic data".…

RT @CaulfieldTim: Fascinating trend. Genomics company https://t.co/dRFRjcY71w wants to "empower people to own their personal genomic data".…

RT @CaulfieldTim: Fascinating trend. Genomics company https://t.co/dRFRjcY71w wants to "empower people to own their personal genomic data".…

RT @CaulfieldTim: Fascinating trend. Genomics company https://t.co/dRFRjcY71w wants to "empower people to own their personal genomic data".…

Fascinating trend. Genomics company https://t.co/dRFRjcY71w wants to "empower people to own their personal genomic data". Nudging toward greater emphasis of "biorights"? Our recent paper seems increasingly relevant: https://t.co/F2y8L5XIqF @HankGreelyLSJU

RT @CaulfieldTim: The rise of biorights? Yep. New project creates infrastructure to biobank & sell your DNA: https://t.co/HqJ2CEkIT1 via @k…

RT @CaulfieldTim: The rise of biorights? Yep. New project creates infrastructure to biobank & sell your DNA: https://t.co/HqJ2CEkIT1 via @k…

RT @CaulfieldTim: The rise of biorights? Yep. New project creates infrastructure to biobank & sell your DNA: https://t.co/HqJ2CEkIT1 via @k…

RT @CaulfieldTim: The rise of biorights? Yep. New project creates infrastructure to biobank & sell your DNA: https://t.co/HqJ2CEkIT1 via @k…

RT @CaulfieldTim: The rise of biorights? Yep. New project creates infrastructure to biobank & sell your DNA: https://t.co/HqJ2CEkIT1 via @k…

The rise of biorights? Yep. New project creates infrastructure to biobank & sell your DNA: https://t.co/HqJ2CEkIT1 via @kristenvbrown. What impact with this have on research? Touched on this trend here: https://t.co/F2y8L5XIqF

RT @CaulfieldTim: Interesting piece by Sipp on the ownership of cell lines. https://t.co/9hDOqF0fLu We come to same conclusion as Sipp, the…

RT @CaulfieldTim: Interesting piece by Sipp on the ownership of cell lines. https://t.co/9hDOqF0fLu We come to same conclusion as Sipp, the…

RT @CaulfieldTim: Interesting piece by Sipp on the ownership of cell lines. https://t.co/9hDOqF0fLu We come to same conclusion as Sipp, the…

RT @CaulfieldTim: Interesting piece by Sipp on the ownership of cell lines. https://t.co/9hDOqF0fLu We come to same conclusion as Sipp, the…

RT @CaulfieldTim: Interesting piece by Sipp on the ownership of cell lines. https://t.co/9hDOqF0fLu We come to same conclusion as Sipp, the…

RT @CaulfieldTim: Interesting piece by Sipp on the ownership of cell lines. https://t.co/9hDOqF0fLu We come to same conclusion as Sipp, the…

Ownership of cell lines https://t.co/O7AbcrWoXe

RT @CaulfieldTim: Interesting piece by Sipp on the ownership of cell lines. https://t.co/9hDOqF0fLu We come to same conclusion as Sipp, the…

RT @CaulfieldTim: Interesting piece by Sipp on the ownership of cell lines. https://t.co/9hDOqF0fLu We come to same conclusion as Sipp, the…

Interesting piece by Sipp on the ownership of cell lines. https://t.co/9hDOqF0fLu We come to same conclusion as Sipp, there is a conflict btw public perception & policy. See https://t.co/F2y8L5G7z7 via @RegMedNet @eurostemcell CC @ISSCR @StemCellNetwo

RT @GeneScan: Genes, cells, and #biobanks: Yes, there’s still a consent problem https://t.co/xCyhMeRaqQ

RT @BioHub: Genes, cells, and #biobanks: Yes, there’s still a consent problem https://t.co/Tk4bjIcmT1

RT @BioHub: Genes, cells, and #biobanks: Yes, there’s still a consent problem https://t.co/Tk4bjIcmT1

RT @Biorepository: Genes, cells, and #biobanks: Yes, there’s still a consent problem https://t.co/v4Yj8N1Ul6

Genes, cells, and #biobanks: Yes, there’s still a consent problem https://t.co/Tk4bjIcmT1

Genes, cells, and #biobanks: Yes, there’s still a consent problem https://t.co/FdkUGZl6u1

Genes, cells, and #biobanks: Yes, there’s still a consent problem https://t.co/xCyhMeRaqQ

Genes, cells, and #biobanks: Yes, there’s still a consent problem https://t.co/b43IWv8RxD

Genes, cells, and #biobanks: Yes, there’s still a consent problem https://t.co/hilsY0Z1PI

Genes, cells, and #biobanks: Yes, there’s still a consent problem https://t.co/9HpkhHWUjN

Genes, cells, and #biobanks: Yes, there’s still a consent problem https://t.co/v4Yj8N1Ul6

Genes, cells, and #biobanks: Yes, there’s still a consent problem https://t.co/Fp8ICpJd8b

RT @jeffmason: Genes, cells, and biobanks: Yes, there’s still a consent problem https://t.co/dO43yQulex #biorights

Genes, cells, and biobanks: Yes, there’s still a consent problem https://t.co/dO43yQulex #biorights

How can we tackle the issue of #gene & cell sample & consent in #Biobanks? Examining ongoing problem https://t.co/nmcLxN2dSA #Biomaterials https://t.co/BSG0TwT9Yr

RT @CaulfieldTim: Study on HeLa cell line contamination: https://t.co/98YeIhjiTb Our piece on social/legal challenges: https://t.co/F2y8L5X…

RT @CaulfieldTim: Study on HeLa cell line contamination: https://t.co/98YeIhjiTb Our piece on social/legal challenges: https://t.co/F2y8L5X…

RT @CaulfieldTim: Study on HeLa cell line contamination: https://t.co/98YeIhjiTb Our piece on social/legal challenges: https://t.co/F2y8L5X…

RT @CaulfieldTim: Study on HeLa cell line contamination: https://t.co/98YeIhjiTb Our piece on social/legal challenges: https://t.co/F2y8L5X…

RT @CaulfieldTim: Study on HeLa cell line contamination: https://t.co/98YeIhjiTb Our piece on social/legal challenges: https://t.co/F2y8L5X…

Study on HeLa cell line contamination: https://t.co/98YeIhjiTb Our piece on social/legal challenges: https://t.co/F2y8L5XIqF #bioethics

RT @CaulfieldTim: Looking forward to speaking in beautiful #Trondheim! Who controls your genes, cells & tissue? See https://t.co/F2y8L5XIqF…

RT @CaulfieldTim: Looking forward to speaking in beautiful #Trondheim! Who controls your genes, cells & tissue? See https://t.co/F2y8L5XIqF…

Looking forward to speaking in beautiful #Trondheim! Who controls your genes, cells & tissue? See https://t.co/F2y8L5XIqF @biotekradet @NTNU

Looking forward to speaking in Trondheim next wk at @NTNU event (return of results): https://t.co/jfUVKsLAhx Warm up https://t.co/F2y8L5XIqF

https://t.co/8ydbRNbPAs #biobank #Ethical

RT @CaulfieldTim: #PLOSBiology: Genes, cells, and biobanks: Yes, there’s still a consent problem https://t.co/uBmHocI2Nu #biobanking #bioet…

RT @CaulfieldTim: #PLOSBiology: Genes, cells, and biobanks: Yes, there’s still a consent problem https://t.co/uBmHocI2Nu #biobanking #bioet…

RT @CaulfieldTim: #PLOSBiology: Genes, cells, and biobanks: Yes, there’s still a consent problem https://t.co/uBmHocI2Nu #biobanking #bioet…

RT @CaulfieldTim: #PLOSBiology: Genes, cells, and biobanks: Yes, there’s still a consent problem https://t.co/uBmHocI2Nu #biobanking #bioet…

RT @CaulfieldTim: #PLOSBiology: Genes, cells, and biobanks: Yes, there’s still a consent problem https://t.co/uBmHocI2Nu #biobanking #bioet…

#PLOSBiology: Genes, cells, and biobanks: Yes, there’s still a consent problem https://t.co/uBmHocI2Nu #biobanking #bioethics #genomics

RT @CaulfieldTim: #PLOSBiology: Genes, cells, and biobanks: Yes, there’s still a consent problem https://t.co/uBmHocI2Nu

RT @CaulfieldTim: #PLOSBiology: Genes, cells, and biobanks: Yes, there’s still a consent problem https://t.co/uBmHocI2Nu

#PLOSBiology: Genes, cells, and biobanks: Yes, there’s still a consent problem https://t.co/uBmHocI2Nu

RT @CaulfieldTim: Our new comment: Genes, cells, and biobanks - Yes, there’s still a consent problem https://t.co/F2y8L5XIqF #biobanking #b…

#PLOSBiology: Genes, cells, and biobanks: Yes, there’s still a consent problem https://t.co/uBmHocI2Nu #UAlberta #biobanking @UAlbertaLaw

RT @CaulfieldTim: Our new comment: Genes, cells, and biobanks - Yes, there’s still a consent problem https://t.co/F2y8L5XIqF #biobanking #b…

RT @BehavEcolPapers: Genes, cells, and biobanks: Yes, there’s still a consent problem https://t.co/dBMDCjey8w @PLOSBiology

RT @BehavEcolPapers: Genes, cells, and biobanks: Yes, there’s still a consent problem https://t.co/dBMDCjey8w @PLOSBiology

Genes, cells, and biobanks: Yes, there’s still a consent problem https://t.co/dBMDCjey8w @PLOSBiology

RT @CaulfieldTim: Our new comment: Genes, cells, and biobanks - Yes, there’s still a consent problem https://t.co/F2y8L5XIqF #biobanking #b…

RT @DrKhouryCDC: Despite enthusiasm about genomics &biobanks, profound legal & ethical challenges remain unresolved. Via @PLOSBiology https…

RT @CaulfieldTim: Our new comment: Genes, cells, and biobanks - Yes, there’s still a consent problem https://t.co/F2y8L5XIqF #biobanking #b…

RT @EcoInternet3: Genes, cells, and biobanks: Yes, there’s still a consent problem: PLOS ONE https://t.co/IkE8PmAqYV #environment

RT @CaulfieldTim: Our new comment: Genes, cells, and biobanks - Yes, there’s still a consent problem https://t.co/F2y8L5XIqF #biobanking #b…

RT @CaulfieldTim: Our new comment: Genes, cells, and biobanks - Yes, there’s still a consent problem https://t.co/F2y8L5XIqF #biobanking #b…

RT @CaulfieldTim: Our new comment: Genes, cells, and biobanks - Yes, there’s still a consent problem https://t.co/F2y8L5XIqF #biobanking #b…

A focus of mine when I worked at an IRB/REB, and remains so as an REB member--biobanks/databases are the future and we need good consent! https://t.co/q6jsVjQFUx

Our new comment: Genes, cells, and biobanks - Yes, there’s still a consent problem https://t.co/F2y8L5XIqF #biobanking #bioethics #UAlberta

#PLOSBiology: Genes, cells, and biobanks: Yes, there’s still a consent problem https://t.co/OAGrWL9rYU

Legal and ethical issues surrounding biobanks are unresolved https://t.co/kwASVs7tGf

RT @DrKhouryCDC: Despite enthusiasm about genomics &biobanks, profound legal & ethical challenges remain unresolved. Via @PLOSBiology https…

RT @DrKhouryCDC: Despite enthusiasm about genomics &biobanks, profound legal & ethical challenges remain unresolved. Via @PLOSBiology https…

Genes, cells, and biobanks: Yes, there’s still a consent problem https://t.co/0zJU3HOsGK

RT @UpbmAsso: les problèmes #éthiques suscités par la création des différentes #biobanques @PLOSBiology https://t.co/dPmyf0YeB5 https://t.…

RT @DrKhouryCDC: Despite enthusiasm about genomics &biobanks, profound legal & ethical challenges remain unresolved. Via @PLOSBiology https…

RT @DrKhouryCDC: Despite enthusiasm about genomics &biobanks, profound legal & ethical challenges remain unresolved. Via @PLOSBiology https…

@BioethicsCentre @bioethics_net @NYU_Bioethics #bioetica #bioethics https://t.co/6hMRNdPOX9

RT @DrKhouryCDC: Despite enthusiasm about genomics &biobanks, profound legal & ethical challenges remain unresolved. Via @PLOSBiology https…

RT @DrKhouryCDC: Despite enthusiasm about genomics &biobanks, profound legal & ethical challenges remain unresolved. Via @PLOSBiology https…

RT @DrKhouryCDC: Despite enthusiasm about genomics &biobanks, profound legal & ethical challenges remain unresolved. Via @PLOSBiology https…

RT @DrKhouryCDC: Despite enthusiasm about genomics &biobanks, profound legal & ethical challenges remain unresolved. Via @PLOSBiology https…

Despite enthusiasm about genomics &biobanks, profound legal & ethical challenges remain unresolved. Via @PLOSBiology https://t.co/hPXsnWHFV8 https://t.co/nlkCuMd3pI